Author Archives: Jill M. Woodworth

About Jill M. Woodworth

Mother of 5. Reigning in the chaos of life with my self expressive blogs. Passionate about a new idea every day. Trying find an adequate platform. Embracing life on a day to day basis and raising my children, 3 with TSC. I am an avid runner, and use running and meditation daily to cope with life. Right now, I am helping tsalliance.org recruit Marine Corp Marathon runners for Team TSC. Go Team! Find a cure!

Team TSC & The Marine Corp Marathon

My running pitch:  I can’t even begin to explain to you how much running has been an elemental coping mechanism in my journey with TSC.  For better or for worse, I have come to running as a corridor of freedom … Continue reading

Posted in #IAMTSC, addiction, autism spectrum disorder, epilepsy, Infantile Spasms, marathon training, medical conditions, parenting, Ram Dass, recovery, special needs, tuberous sclerosis complex, Wheaton College | Leave a comment

Dear Wheaton College,

Brief letter to my alma mater discussing the meaning of “fallng” Wheatie. Continue reading

Posted in addiction, Buddhism, Wheaton College | Tagged , , | 5 Comments

What Tuberous Sclerosis Complex taught me about love

A glimpse into the process of letting go of my 22 year old daughter who has TSC, to a shared living situation Continue reading

Posted in #IAMTSC, autism spectrum disorder, epilepsy, Infantile Spasms, medical conditions, parenting, special needs, tuberous sclerosis complex | 1 Comment

Precious Moments~by JD Brigham

So, funny story. Stop me if you’ve heard this one. Some of you have. When my boy was about 8 months old, about that time children start to mimic what you say. You say “Dah Dah” he says in his … Continue reading

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Special Needs Mom.

I am a mom with lots of special needs.   I’m irritable, exhausted….with an extreme sparsity of emotional energy and nothing positive to discuss. I feel all alone at time, charting unmapped territory.  It’s as if I’m a early frontierswoman, navigating … Continue reading

Posted in addiction | 1 Comment

Lost at the Big Y, STUCK at Walmart. A rather long rant.

When my son Jack was around age 3-4, he was a bolter. I mean a runner.  A dasher.  As in Dash from The Incredibles, dasher.  And fast!  The kid would just flat out beat a trail away from me at … Continue reading

Posted in #IAMTSC, addiction, autism spectrum disorder, Buddhism, epilepsy, medical conditions, parenting, special needs, tuberous sclerosis complex, Uncategorized, Wheaton College | 1 Comment

Infantile Spasm Miracles

“Infantile spasms (IS) is an age-specific seizure type that occurs in 1 out of 2,000 children from many different causes. Tuberous sclerosis complex (also called TSC) is a common cause of infantile spasms, with IS affecting about one third of children with … Continue reading

Posted in #IAMTSC, #ISAW2016, autism spectrum disorder, cannabis, epilepsy, Infantile Spasms, medical conditions, parenting, special needs, tuberous sclerosis complex | 1 Comment

My son Jack was concerned recently that he had acquired Tetanus. Lockjaw.  He locked down on this notion and obsessed about it to the point of not being able to eat or sleep, was having trouble functioning at school and … Continue reading

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Trumped!!

I glimpsed her red trump hat as I turned the corner to go out onto the main road.  She was dressed in shades and patterns of red, swinging her arms and walking in rhythm to her music, a constant companion. … Continue reading

Posted in #IAMTSC, autism spectrum disorder, Buddhism, Eckhart Tolle, medical conditions, parenting, Ram Dass, recovery, tuberous sclerosis complex | Tagged , , , , , , , | 1 Comment

The Power of Ice Cream

We have this little issue with ice cream in our family.  It goes way back.  Way back in my ancestral tribe.  Maybe it’s something that goes way back for a lot of us, those first memories of eating ice cream, … Continue reading

Posted in #IAMTSC, addiction, Buddhism, Eckhart Tolle, medical conditions, parenting, Ram Dass, recovery, Tara Brach, tuberous sclerosis complex | Leave a comment