- TSC & Mental Health
- Team TSC & The Marine Corp Marathon
- Dear Wheaton College,
- What Tuberous Sclerosis Complex taught me about love
- Precious Moments~by JD Brigham
- Special Needs Mom.
- Lost at the Big Y, STUCK at Walmart. A rather long rant.
- Infantile Spasm Miracles
- The Power of Ice Cream
- The Path…infused with Artisanal by Dad
- Happy Mother’s Day, a bit early for once.
- Marathon Aftermath
- Homeward Bound via the Boston Marathon
- Booze at the Big Y
- Running Out
- Crisis of Faith
- Scattered Roots and Holiday Musings
- My Friend Paul & Addendum
- Everything Is Broken
- Love wins.
- Closer to Fine
- War On Drugs?
- My Five Precious Teachers
- The Open Heart Curriculum
- The Awkward Rapper
- Cabin Fever and a blog prompt. Unedited.
- My hero, Mom.
- Letter to a Young TSC Mom-unedited version
- Post Season Musings
- TSC Journey
- Poking the Bear.
- Happy Halloween…..
- Mothers without Custody
- The Fifth Child.
- From addiction to grace. A life hack. (rated PG)
- What is it Like Having Tuberous Sclerosis Complex (T.S.C.)
- TSC TALKS Podcast
Author Archives: Jill Woodworth
Giving Thanks for My Specials – Thanksgiving Day 1993 Nina Patry~Guest Blogger
The following blog was written in 1993 by my new and good friend, Nina Patry. Nina hails from Rutland Vermont. Her claim to fame is that she is a certified Paradox Process instructor. We met last year while I was … Continue reading
Special Needs, Disabilities and the New World Order
In the brave new world into which it appears that we are headed and the increased attention to rigid controlled and mandated “health” measures, escalating global surveillance, pressure to either join the party or be left behind, we are often … Continue reading
My Friend Paul & Addendum
Since I wrote this blog, back in October of 2015, Paul has passed. Continue reading
Posted in Uncategorized 3 Comments
Special Needs Mom Freaking Out
I do not know how to get it out. I do not know how everyone can go along and pretend this is not happening. I feel like my heart is breaking and there is a part of my mind that is shadowed and dark as I try to figure out how to go forward. Does it even matter? Continue reading
Posted in addiction, autism spectrum disorder, Buddhism, Cannabinoid medicine, cannabis, epilepsy, medical conditions, parenting, recovery, special needs, tuberous sclerosis complex, Wheaton College Tagged #cannabis, #Coronavirus, #mentalhealth, #runner, #special needs, #wheatoncollege, COVID 19, tuberous sclerosis 2 Comments
So you play along, educate yourself, immerse yourself in reading and learning everything you can get your hands on in order to navigate the medical system and get your kids the best possible care. Continue reading
Posted in #IAMTSC, Cannabinoid medicine, cannabis, epilepsy, special needs, tuberous sclerosis complex Tagged #podcast #autismawareness #epilepsy #parenting #raredisease #PTSD #chronicdisease, autism, Cannabinoid medicine, cannabis, epilepsy, medical conditions, parenting, polypharmacy, seizures, tuberous sclerosis complex 3 Comments
Back to School and The “Graduation” Navigation
B.S.(Before Script)…in case you thought otherwise. So, now summer has past and Jack just started back to school. He had a decent summer and is now attending the “post-grad” program at his local high school. The following post was written … Continue reading
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Protected: The Personal Pitfalls of Chronic Disease (TSC) meeting PTSD
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Posted in #IAMTSC, addiction, autism spectrum disorder, Buddhism, epilepsy, medical conditions, parenting, Ram Dass, recovery, special needs, tuberous sclerosis complex Tagged #podcast #autismawareness #epilepsy #parenting #raredisease #PTSD #chronicdisease Enter your password to view comments.
Let’s get together and Podcast!
LISTEN TO LATEST How podcasting can build and gather information and motivate change within communities affected by rare medical diseases Creating podcasts within communities affected by a particular disease, and initiating the discussion between parents/caregivers/patients in an interview format, is … Continue reading
TSC & Mental Health
The experience of neuropsychiatric issues and TSC , TAND checklist, raising funds Continue reading
Posted in #IAMTSC, addiction, autism spectrum disorder, epilepsy, marathon training, medical conditions, parenting, special needs, tuberous sclerosis complex Tagged #IAMTSC, #marathonrunner, #mentalhealth #runner #specialneeds #IAMTSC, christian college, medical conditions, parenting, rare diseases, tuberous sclerosis, Wheaton College 1 Comment
#worldTSCconference 2018 and the Power of TSC Moms
I had a bit of a re-entry crash on Sunday when I got home to Rutland MA. I had attended my first ever World TSC Conference in Dallas TX for the past 4 days with my mother. If you don’t … Continue reading
Posted in tuberous sclerosis complex 6 Comments