Author Archives: Jill M. Woodworth

About Jill M. Woodworth

Mother of 5. Reigning in the chaos of life with my self expressive blogs. Passionate about a new idea every day. Trying find an adequate platform. Embracing life on a day to day basis and raising my children, 3 with TSC. I am an avid runner, and use running and meditation daily to cope with life. Right now, I am helping tsalliance.org recruit Marine Corp Marathon runners for Team TSC. Go Team! Find a cure!

Bridge Over Troubled Water

Discussion of how TSC and related behavior affects a wider circle of people and the fallout when not understood Continue reading

Posted in #IAMTSC, addiction, autism spectrum disorder, Buddhism, cannabis, Eckhart Tolle, epilepsy, Infantile Spasms, marathon training, medical conditions, parenting, Ram Dass, recovery, special needs, Tara Brach, tuberous sclerosis complex, Wheaton College | Tagged , , , , , , , , | 1 Comment

Let’s get together and Podcast!

LISTEN TO LATEST How podcasting can build and gather information and motivate change within communities affected by rare medical diseases Creating podcasts within communities affected by a particular disease, and initiating the discussion between parents/caregivers/patients in an interview format, is … Continue reading

Posted in #IAMTSC, autism spectrum disorder, epilepsy, Infantile Spasms, medical conditions, parenting, special needs, tuberous sclerosis complex | Tagged , , | 1 Comment

TSC & Mental Health

The experience of neuropsychiatric issues and TSC , TAND checklist, raising funds Continue reading

Posted in #IAMTSC, addiction, autism spectrum disorder, epilepsy, marathon training, medical conditions, parenting, special needs, tuberous sclerosis complex | Tagged , , , , , , , , | 1 Comment

#worldTSCconference 2018 and the Power of TSC Moms

I had a bit of a re-entry crash on Sunday when I got home to Rutland MA. I had attended my first ever World TSC Conference in Dallas TX for the past 4 days with my mother. If you don’t … Continue reading

Posted in tuberous sclerosis complex | 6 Comments

Team TSC & The Marine Corp Marathon

My running pitch:  I can’t even begin to explain to you how much running has been an elemental coping mechanism in my journey with TSC.  For better or for worse, I have come to running as a corridor of freedom … Continue reading

Posted in #IAMTSC, addiction, autism spectrum disorder, epilepsy, Infantile Spasms, marathon training, medical conditions, parenting, Ram Dass, recovery, special needs, tuberous sclerosis complex, Wheaton College | 2 Comments

Dear Wheaton College,

Brief letter to my alma mater discussing the meaning of “fallng” Wheatie. Continue reading

Posted in addiction, Buddhism, Wheaton College | Tagged , , | 5 Comments

What Tuberous Sclerosis Complex taught me about love

A glimpse into the process of letting go of my 22 year old daughter who has TSC, to a shared living situation Continue reading

Posted in #IAMTSC, autism spectrum disorder, epilepsy, Infantile Spasms, medical conditions, parenting, special needs, tuberous sclerosis complex | 4 Comments

Precious Moments~by JD Brigham

So, funny story. Stop me if you’ve heard this one. Some of you have. When my boy was about 8 months old, about that time children start to mimic what you say. You say “Dah Dah” he says in his … Continue reading

Posted in parenting | 2 Comments

Special Needs Mom.

I am a mom with lots of special needs.   I’m irritable, exhausted….with an extreme sparsity of emotional energy and nothing positive to discuss. I feel all alone at time, charting unmapped territory.  It’s as if I’m a early frontierswoman, navigating … Continue reading

Posted in addiction | 3 Comments

Lost at the Big Y, STUCK at Walmart. A rather long rant.

When my son Jack was around age 3-4, he was a bolter. I mean a runner.  A dasher.  As in Dash from The Incredibles, dasher.  And fast!  The kid would just flat out beat a trail away from me at … Continue reading

Posted in #IAMTSC, addiction, autism spectrum disorder, Buddhism, epilepsy, medical conditions, parenting, special needs, tuberous sclerosis complex, Uncategorized, Wheaton College | 1 Comment