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Blogs
- TSC & Mental Health
- Team TSC & The Marine Corp Marathon
- Dear Wheaton College,
- What Tuberous Sclerosis Complex taught me about love
- Precious Moments~by JD Brigham
- Special Needs Mom.
- Lost at the Big Y, STUCK at Walmart. A rather long rant.
- TETANUS
- Infantile Spasm Miracles
- Trumped!!
- The Power of Ice Cream
- The Path…infused with Artisanal by Dad
- Happy Mother’s Day, a bit early for once.
- Marathon Aftermath
- Homeward Bound via the Boston Marathon
- Booze at the Big Y
- Running Out
- Crisis of Faith
- Scattered Roots and Holiday Musings
- My Friend Paul & Addendum
- Everything Is Broken
- Love wins.
- Closer to Fine
- War On Drugs?
- My Five Precious Teachers
- The Open Heart Curriculum
- The Awkward Rapper
- Cabin Fever and a blog prompt. Unedited.
- My hero, Mom.
- Letter to a Young TSC Mom-unedited version
- Post Season Musings
- TSC Journey
- Poking the Bear.
- Dad.
- Happy Halloween…..
- Mothers without Custody
- The Fifth Child.
- From addiction to grace. A life hack. (rated PG)
- What is it Like Having Tuberous Sclerosis Complex (T.S.C.)
- TSC TALKS Podcast
Category Archives: addiction
Special Needs Mom Freaking Out
I do not know how to get it out. I do not know how everyone can go along and pretend this is not happening. I feel like my heart is breaking and there is a part of my mind that is shadowed and dark as I try to figure out how to go forward. Does it even matter? Continue reading
Posted in addiction, autism spectrum disorder, Buddhism, Cannabinoid medicine, cannabis, epilepsy, medical conditions, parenting, recovery, special needs, tuberous sclerosis complex, Wheaton College
Tagged #cannabis, #Coronavirus, #mentalhealth, #runner, #special needs, #wheatoncollege, COVID 19, tuberous sclerosis
2 Comments
Protected: The Personal Pitfalls of Chronic Disease (TSC) meeting PTSD
There is no excerpt because this is a protected post.
Posted in #IAMTSC, addiction, autism spectrum disorder, Buddhism, epilepsy, medical conditions, parenting, Ram Dass, recovery, special needs, tuberous sclerosis complex
Tagged #podcast #autismawareness #epilepsy #parenting #raredisease #PTSD #chronicdisease
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TSC & Mental Health
The experience of neuropsychiatric issues and TSC , TAND checklist, raising funds Continue reading
Posted in #IAMTSC, addiction, autism spectrum disorder, epilepsy, marathon training, medical conditions, parenting, special needs, tuberous sclerosis complex
Tagged #IAMTSC, #marathonrunner, #mentalhealth #runner #specialneeds #IAMTSC, christian college, medical conditions, parenting, rare diseases, tuberous sclerosis, Wheaton College
1 Comment
Team TSC & The Marine Corp Marathon
My running pitch: I can’t even begin to explain to you how much running has been an elemental coping mechanism in my journey with TSC. For better or for worse, I have come to running as a corridor of freedom … Continue reading
Dear Wheaton College,
Brief letter to my alma mater discussing the meaning of “fallng” Wheatie. Continue reading
Posted in addiction, Buddhism, Wheaton College
Tagged #marathonrunner, #wheatoncollege, christian college
5 Comments
Special Needs Mom.
I am a mom with lots of special needs. I’m irritable, exhausted….with an extreme sparsity of emotional energy and nothing positive to discuss. I feel all alone at time, charting unmapped territory. It’s as if I’m a early frontierswoman, navigating … Continue reading
Posted in addiction
3 Comments
Lost at the Big Y, STUCK at Walmart. A rather long rant.
When my son Jack was around age 3-4, he was a bolter. I mean a runner. A dasher. As in Dash from The Incredibles, dasher. And fast! The kid would just flat out beat a trail away from me at … Continue reading
TETANUS
My son Jack was concerned recently that he had acquired Tetanus. Lockjaw. He locked down on this notion and obsessed about it to the point of not being able to eat or sleep, was having trouble functioning at school and … Continue reading
The Power of Ice Cream
We have this little issue with ice cream in our family. It goes way back. Way back in my ancestral tribe. Maybe it’s something that goes way back for a lot of us, those first memories of eating ice cream, … Continue reading
The Path…infused with Artisanal by Dad
My father died of fronto-temporal dementia in September of 2004. He was an exceptional human being in the way we all are exceptional human beings, however, he knew it. He was a paratrooper in his early twenties and jumped out … Continue reading
Posted in #IAMTSC, addiction, Buddhism, medical conditions, parenting, Ram Dass, Tara Brach, tuberous sclerosis complex, Uncategorized
Tagged addiction, recovery, Wheaton College
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True grit motherhood. 