Category Archives: #IAMTSC
Team TSC & The Marine Corp Marathon
My running pitch: I can’t even begin to explain to you how much running has been an elemental coping mechanism in my journey with TSC. For better or for worse, I have come to running as a corridor of freedom … Continue reading
What Tuberous Sclerosis Complex taught me about love
A glimpse into the process of letting go of my 22 year old daughter who has TSC, to a shared living situation Continue reading
Lost at the Big Y, STUCK at Walmart. A rather long rant.
When my son Jack was around age 3-4, he was a bolter. I mean a runner. A dasher. As in Dash from The Incredibles, dasher. And fast! The kid would just flat out beat a trail away from me at … Continue reading
Infantile Spasm Miracles
“Infantile spasms (IS) is an age-specific seizure type that occurs in 1 out of 2,000 children from many different causes. Tuberous sclerosis complex (also called TSC) is a common cause of infantile spasms, with IS affecting about one third of children with … Continue reading
My son Jack was concerned recently that he had acquired Tetanus. Lockjaw. He locked down on this notion and obsessed about it to the point of not being able to eat or sleep, was having trouble functioning at school and … Continue reading
Trumped!!
I glimpsed her red trump hat as I turned the corner to go out onto the main road. She was dressed in shades and patterns of red, swinging her arms and walking in rhythm to her music, a constant companion. … Continue reading
The Power of Ice Cream
We have this little issue with ice cream in our family. It goes way back. Way back in my ancestral tribe. Maybe it’s something that goes way back for a lot of us, those first memories of eating ice cream, … Continue reading
Discourse on Madness
In my own personal reflections lately, I’ve often pondered just what it is about the label “recovering” alcoholic, that I find frustrating personally, as well as what it is about 12 step support groups, and the overall image of the … Continue reading
The Path…infused with Artisanal by Dad
My father died of fronto-temporal dementia in September of 2004. He was an exceptional human being in the way we all are exceptional human beings, however, he knew it. He was a paratrooper in his early twenties and jumped out … Continue reading
Posted in #IAMTSC, addiction, Buddhism, medical conditions, parenting, Ram Dass, Tara Brach, tuberous sclerosis complex, Uncategorized
Tagged addiction, recovery, Wheaton College
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Running Out
And so, I ran my way out of my crisis of faith. Faith looks like running shoes and the great outdoors. I have been a runner for many many years and find running outside such a solace; me, my shoes … Continue reading
