Category Archives: #IAMTSC

Polypharmacy Rant

Posted on November 3, 2019 by Jill Woodworth

So you play along, educate yourself, immerse yourself in reading and learning everything you can get your hands on in order to navigate the medical system and get your kids the best possible care. Continue reading →

Posted in #IAMTSC, Cannabinoid medicine, cannabis, epilepsy, special needs, tuberous sclerosis complex | Tagged , , , , , , , , , | 3 Comments

Protected: The Personal Pitfalls of Chronic Disease (TSC) meeting PTSD

Posted on January 10, 2019 by Jill Woodworth

There is no excerpt because this is a protected post.

Posted in #IAMTSC, addiction, autism spectrum disorder, Buddhism, epilepsy, medical conditions, parenting, Ram Dass, recovery, special needs, tuberous sclerosis complex | Tagged | Enter your password to view comments.

Let’s get together and Podcast!

Posted on September 29, 2018 by Jill Woodworth

LISTEN TO LATEST How podcasting can build and gather information and motivate change within communities affected by rare medical diseases Creating podcasts within communities affected by a particular disease, and initiating the discussion between parents/caregivers/patients in an interview format, is … Continue reading →

Posted in #IAMTSC, autism spectrum disorder, epilepsy, Infantile Spasms, medical conditions, parenting, special needs, tuberous sclerosis complex | Tagged , , | 3 Comments

TSC & Mental Health

Posted on August 8, 2018 by Jill Woodworth

The experience of neuropsychiatric issues and TSC , TAND checklist, raising funds Continue reading →

Posted in #IAMTSC, addiction, autism spectrum disorder, epilepsy, marathon training, medical conditions, parenting, special needs, tuberous sclerosis complex | Tagged , , , , , , , , | 1 Comment

Team TSC & The Marine Corp Marathon

Posted on May 22, 2018 by Jill Woodworth

My running pitch:  I can’t even begin to explain to you how much running has been an elemental coping mechanism in my journey with TSC.  For better or for worse, I have come to running as a corridor of freedom … Continue reading →

Posted in #IAMTSC, addiction, autism spectrum disorder, epilepsy, Infantile Spasms, marathon training, medical conditions, parenting, Ram Dass, recovery, special needs, tuberous sclerosis complex, Wheaton College | 2 Comments

What Tuberous Sclerosis Complex taught me about love

Posted on March 25, 2018 by Jill Woodworth

A glimpse into the process of letting go of my 22 year old daughter who has TSC, to a shared living situation Continue reading →

Posted in #IAMTSC, autism spectrum disorder, epilepsy, Infantile Spasms, medical conditions, parenting, special needs, tuberous sclerosis complex | 5 Comments

Lost at the Big Y, STUCK at Walmart. A rather long rant.

Posted on January 13, 2017 by Jill Woodworth

When my son Jack was around age 3-4, he was a bolter. I mean a runner.  A dasher.  As in Dash from The Incredibles, dasher.  And fast!  The kid would just flat out beat a trail away from me at … Continue reading →

Posted in #IAMTSC, addiction, autism spectrum disorder, Buddhism, epilepsy, medical conditions, parenting, special needs, tuberous sclerosis complex, Uncategorized, Wheaton College | 1 Comment

Infantile Spasm Miracles

Posted on December 2, 2016 by Jill Woodworth

“Infantile spasms (IS) is an age-specific seizure type that occurs in 1 out of 2,000 children from many different causes. Tuberous sclerosis complex (also called TSC) is a common cause of infantile spasms, with IS affecting about one third of children with … Continue reading →

Posted in #IAMTSC, #ISAW2016, autism spectrum disorder, cannabis, epilepsy, Infantile Spasms, medical conditions, parenting, special needs, tuberous sclerosis complex | 2 Comments

TETANUS

Posted on November 30, 2016 by Jill Woodworth

My son Jack was concerned recently that he had acquired Tetanus. Lockjaw.  He locked down on this notion and obsessed about it to the point of not being able to eat or sleep, was having trouble functioning at school and … Continue reading →

Posted in #IAMTSC, addiction, autism spectrum disorder, Buddhism, cannabis, epilepsy, medical conditions, parenting, Ram Dass, special needs, tuberous sclerosis complex, Uncategorized | 2 Comments

The Power of Ice Cream

Posted on July 27, 2016 by Jill Woodworth

We have this little issue with ice cream in our family.  It goes way back.  Way back in my ancestral tribe.  Maybe it’s something that goes way back for a lot of us, those first memories of eating ice cream, … Continue reading →

Posted in #IAMTSC, addiction, Buddhism, Eckhart Tolle, medical conditions, parenting, Ram Dass, recovery, Tara Brach, tuberous sclerosis complex | Leave a comment