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Blogs
- TSC & Mental Health
- Team TSC & The Marine Corp Marathon
- Dear Wheaton College,
- What Tuberous Sclerosis Complex taught me about love
- Precious Moments~by JD Brigham
- Special Needs Mom.
- Lost at the Big Y, STUCK at Walmart. A rather long rant.
- TETANUS
- Infantile Spasm Miracles
- Trumped!!
- The Power of Ice Cream
- The Path…infused with Artisanal by Dad
- Happy Mother’s Day, a bit early for once.
- Marathon Aftermath
- Homeward Bound via the Boston Marathon
- Booze at the Big Y
- Running Out
- Crisis of Faith
- Scattered Roots and Holiday Musings
- My Friend Paul & Addendum
- Everything Is Broken
- Love wins.
- Closer to Fine
- War On Drugs?
- My Five Precious Teachers
- The Open Heart Curriculum
- The Awkward Rapper
- Cabin Fever and a blog prompt. Unedited.
- My hero, Mom.
- Letter to a Young TSC Mom-unedited version
- Post Season Musings
- TSC Journey
- Poking the Bear.
- Dad.
- Happy Halloween…..
- Mothers without Custody
- The Fifth Child.
- From addiction to grace. A life hack. (rated PG)
- What is it Like Having Tuberous Sclerosis Complex (T.S.C.)
- TSC TALKS Podcast
Category Archives: #IAMTSC
Polypharmacy Rant
So you play along, educate yourself, immerse yourself in reading and learning everything you can get your hands on in order to navigate the medical system and get your kids the best possible care. Continue reading
Posted in #IAMTSC, Cannabinoid medicine, cannabis, epilepsy, special needs, tuberous sclerosis complex
Tagged #podcast #autismawareness #epilepsy #parenting #raredisease #PTSD #chronicdisease, autism, Cannabinoid medicine, cannabis, epilepsy, medical conditions, parenting, polypharmacy, seizures, tuberous sclerosis complex
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Protected: The Personal Pitfalls of Chronic Disease (TSC) meeting PTSD
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Posted in #IAMTSC, addiction, autism spectrum disorder, Buddhism, epilepsy, medical conditions, parenting, Ram Dass, recovery, special needs, tuberous sclerosis complex
Tagged #podcast #autismawareness #epilepsy #parenting #raredisease #PTSD #chronicdisease
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Let’s get together and Podcast!
LISTEN TO LATEST How podcasting can build and gather information and motivate change within communities affected by rare medical diseases Creating podcasts within communities affected by a particular disease, and initiating the discussion between parents/caregivers/patients in an interview format, is … Continue reading
TSC & Mental Health
The experience of neuropsychiatric issues and TSC , TAND checklist, raising funds Continue reading
Posted in #IAMTSC, addiction, autism spectrum disorder, epilepsy, marathon training, medical conditions, parenting, special needs, tuberous sclerosis complex
Tagged #IAMTSC, #marathonrunner, #mentalhealth #runner #specialneeds #IAMTSC, christian college, medical conditions, parenting, rare diseases, tuberous sclerosis, Wheaton College
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Team TSC & The Marine Corp Marathon
My running pitch: I can’t even begin to explain to you how much running has been an elemental coping mechanism in my journey with TSC. For better or for worse, I have come to running as a corridor of freedom … Continue reading
What Tuberous Sclerosis Complex taught me about love
A glimpse into the process of letting go of my 22 year old daughter who has TSC, to a shared living situation Continue reading
Lost at the Big Y, STUCK at Walmart. A rather long rant.
When my son Jack was around age 3-4, he was a bolter. I mean a runner. A dasher. As in Dash from The Incredibles, dasher. And fast! The kid would just flat out beat a trail away from me at … Continue reading
Infantile Spasm Miracles
“Infantile spasms (IS) is an age-specific seizure type that occurs in 1 out of 2,000 children from many different causes. Tuberous sclerosis complex (also called TSC) is a common cause of infantile spasms, with IS affecting about one third of children with … Continue reading
TETANUS
My son Jack was concerned recently that he had acquired Tetanus. Lockjaw. He locked down on this notion and obsessed about it to the point of not being able to eat or sleep, was having trouble functioning at school and … Continue reading
The Power of Ice Cream
We have this little issue with ice cream in our family. It goes way back. Way back in my ancestral tribe. Maybe it’s something that goes way back for a lot of us, those first memories of eating ice cream, … Continue reading
True grit motherhood. 