Tag Archives: rare diseases

Let’s get together and Podcast!

LISTEN TO LATEST How podcasting can build and gather information and motivate change within communities affected by rare medical diseases Creating podcasts within communities affected by a particular disease, and initiating the discussion between parents/caregivers/patients in an interview format, is … Continue reading

Posted in #IAMTSC, autism spectrum disorder, epilepsy, Infantile Spasms, medical conditions, parenting, special needs, tuberous sclerosis complex | Tagged , , | 1 Comment

TSC & Mental Health

The experience of neuropsychiatric issues and TSC , TAND checklist, raising funds Continue reading

Posted in #IAMTSC, addiction, autism spectrum disorder, epilepsy, marathon training, medical conditions, parenting, special needs, tuberous sclerosis complex | Tagged , , , , , , , , | 1 Comment

Trumped!!

I glimpsed her red trump hat as I turned the corner to go out onto the main road.  She was dressed in shades and patterns of red, swinging her arms and walking in rhythm to her music, a constant companion. … Continue reading

Posted in #IAMTSC, autism spectrum disorder, Buddhism, Eckhart Tolle, medical conditions, parenting, Ram Dass, recovery, tuberous sclerosis complex | Tagged , , , , , , , | 1 Comment

Running Out

And so, I ran my way out of my crisis of faith. Faith looks like running shoes and the great outdoors. I have been a runner for many many years and find running outside such a solace; me, my shoes … Continue reading

Posted in #IAMTSC, addiction, Buddhism, medical conditions, parenting, tuberous sclerosis complex | Tagged , , , , , , , , , , | Leave a comment

Crisis of Faith

I am having a true crisis of faith lately and I am struggling emotionally to come to terms with the life I have had a good hand in creating for myself.  If I can believe in God and that this … Continue reading

Posted in addiction, medical conditions, parenting, tuberous sclerosis complex | Tagged , , , , , | 6 Comments

From addiction to grace. A life hack. (rated PG)

I experienced a life hack when I was cast into the realm of the spiritual world during a marijuana induced psychosis.  I had a true out of body experience that was at once as horrifying as it was incredible.  It … Continue reading

Posted in addiction, Buddhism, medical conditions, parenting, Ram Dass, Tara Brach, tuberous sclerosis complex | Tagged , , , , , , , | 2 Comments