Tag Archives: rare diseases

Special Needs, Disabilities and the New World Order

Posted on September 13, 2021 by Jill Woodworth

In the brave new world into which it appears that we are headed and the increased attention to rigid controlled and mandated “health” measures, escalating global surveillance, pressure to either join the party or be left behind, we are often … Continue reading →

Posted in tuberous sclerosis complex | Tagged , , , , , | Leave a comment

Let’s get together and Podcast!

Posted on September 29, 2018 by Jill Woodworth

LISTEN TO LATEST How podcasting can build and gather information and motivate change within communities affected by rare medical diseases Creating podcasts within communities affected by a particular disease, and initiating the discussion between parents/caregivers/patients in an interview format, is … Continue reading →

Posted in #IAMTSC, autism spectrum disorder, epilepsy, Infantile Spasms, medical conditions, parenting, special needs, tuberous sclerosis complex | Tagged , , | 3 Comments

TSC & Mental Health

Posted on August 8, 2018 by Jill Woodworth

The experience of neuropsychiatric issues and TSC , TAND checklist, raising funds Continue reading →

Posted in #IAMTSC, addiction, autism spectrum disorder, epilepsy, marathon training, medical conditions, parenting, special needs, tuberous sclerosis complex | Tagged , , , , , , , , | 1 Comment

Running Out

Posted on January 27, 2016 by Jill Woodworth

And so, I ran my way out of my crisis of faith. Faith looks like running shoes and the great outdoors. I have been a runner for many many years and find running outside such a solace; me, my shoes … Continue reading →

Posted in #IAMTSC, addiction, Buddhism, medical conditions, parenting, tuberous sclerosis complex | Tagged , , , , , , , , , , | Leave a comment

Crisis of Faith

Posted on December 11, 2015 by Jill Woodworth

I am having a true crisis of faith lately and I am struggling emotionally to come to terms with the life I have had a good hand in creating for myself.  If I can believe in God and that this … Continue reading →

Posted in addiction, medical conditions, parenting, tuberous sclerosis complex | Tagged , , , , , | 6 Comments

From addiction to grace. A life hack. (rated PG)

Posted on September 13, 2014 by Jill Woodworth

I experienced a life hack when I was cast into the realm of the spiritual world during a marijuana induced psychosis.  I had a true out of body experience that was at once as horrifying as it was incredible.  It … Continue reading →

Posted in addiction, Buddhism, medical conditions, parenting, Ram Dass, Tara Brach, tuberous sclerosis complex | Tagged , , , , , , , | 2 Comments