Category Archives: parenting

Giving Thanks for My Specials – Thanksgiving Day 1993 Nina Patry~Guest Blogger

Posted on May 5, 2022 by Jill Woodworth

The following blog was written in 1993 by my new and good friend, Nina Patry. Nina hails from Rutland Vermont. Her claim to fame is that she is a certified Paradox Process instructor. We met last year while I was … Continue reading →

Posted in autism spectrum disorder, medical conditions, parenting, special needs, tuberous sclerosis complex | Tagged , , | Leave a comment

Special Needs Mom Freaking Out

Posted on November 27, 2020 by Jill Woodworth

I do not know how to get it out. I do not know how everyone can go along and pretend this is not happening. I feel like my heart is breaking and there is a part of my mind that is shadowed and dark as I try to figure out how to go forward. Does it even matter? Continue reading →

Posted in addiction, autism spectrum disorder, Buddhism, Cannabinoid medicine, cannabis, epilepsy, medical conditions, parenting, recovery, special needs, tuberous sclerosis complex, Wheaton College | Tagged , , , , , , , | 2 Comments

Protected: The Personal Pitfalls of Chronic Disease (TSC) meeting PTSD

Posted on January 10, 2019 by Jill Woodworth

There is no excerpt because this is a protected post.

Posted in #IAMTSC, addiction, autism spectrum disorder, Buddhism, epilepsy, medical conditions, parenting, Ram Dass, recovery, special needs, tuberous sclerosis complex | Tagged | Enter your password to view comments.

Let’s get together and Podcast!

Posted on September 29, 2018 by Jill Woodworth

LISTEN TO LATEST How podcasting can build and gather information and motivate change within communities affected by rare medical diseases Creating podcasts within communities affected by a particular disease, and initiating the discussion between parents/caregivers/patients in an interview format, is … Continue reading →

Posted in #IAMTSC, autism spectrum disorder, epilepsy, Infantile Spasms, medical conditions, parenting, special needs, tuberous sclerosis complex | Tagged , , | 3 Comments

TSC & Mental Health

Posted on August 8, 2018 by Jill Woodworth

The experience of neuropsychiatric issues and TSC , TAND checklist, raising funds Continue reading →

Posted in #IAMTSC, addiction, autism spectrum disorder, epilepsy, marathon training, medical conditions, parenting, special needs, tuberous sclerosis complex | Tagged , , , , , , , , | 1 Comment

Team TSC & The Marine Corp Marathon

Posted on May 22, 2018 by Jill Woodworth

My running pitch:  I can’t even begin to explain to you how much running has been an elemental coping mechanism in my journey with TSC.  For better or for worse, I have come to running as a corridor of freedom … Continue reading →

Posted in #IAMTSC, addiction, autism spectrum disorder, epilepsy, Infantile Spasms, marathon training, medical conditions, parenting, Ram Dass, recovery, special needs, tuberous sclerosis complex, Wheaton College | 2 Comments

What Tuberous Sclerosis Complex taught me about love

Posted on March 25, 2018 by Jill Woodworth

A glimpse into the process of letting go of my 22 year old daughter who has TSC, to a shared living situation Continue reading →

Posted in #IAMTSC, autism spectrum disorder, epilepsy, Infantile Spasms, medical conditions, parenting, special needs, tuberous sclerosis complex | 7 Comments

Precious Moments~by JD Brigham

Posted on December 15, 2017 by Jill Woodworth

So, funny story. Stop me if you’ve heard this one. Some of you have. When my boy was about 8 months old, about that time children start to mimic what you say. You say “Dah Dah” he says in his … Continue reading →

Posted in parenting | 2 Comments

Lost at the Big Y, STUCK at Walmart. A rather long rant.

Posted on January 13, 2017 by Jill Woodworth

When my son Jack was around age 3-4, he was a bolter. I mean a runner.  A dasher.  As in Dash from The Incredibles, dasher.  And fast!  The kid would just flat out beat a trail away from me at … Continue reading →

Posted in #IAMTSC, addiction, autism spectrum disorder, Buddhism, epilepsy, medical conditions, parenting, special needs, tuberous sclerosis complex, Uncategorized, Wheaton College | 1 Comment

Infantile Spasm Miracles

Posted on December 2, 2016 by Jill Woodworth

“Infantile spasms (IS) is an age-specific seizure type that occurs in 1 out of 2,000 children from many different causes. Tuberous sclerosis complex (also called TSC) is a common cause of infantile spasms, with IS affecting about one third of children with … Continue reading →

Posted in #IAMTSC, #ISAW2016, autism spectrum disorder, cannabis, epilepsy, Infantile Spasms, medical conditions, parenting, special needs, tuberous sclerosis complex | 2 Comments