- TSC & Mental Health
- Team TSC & The Marine Corp Marathon
- Dear Wheaton College,
- What Tuberous Sclerosis Complex taught me about love
- Precious Moments~by JD Brigham
- Special Needs Mom.
- Lost at the Big Y, STUCK at Walmart. A rather long rant.
- Infantile Spasm Miracles
- The Power of Ice Cream
- The Path…infused with Artisanal by Dad
- Happy Mother’s Day, a bit early for once.
- Marathon Aftermath
- Homeward Bound via the Boston Marathon
- Booze at the Big Y
- Running Out
- Crisis of Faith
- Scattered Roots and Holiday Musings
- My Friend Paul & Addendum
- Everything Is Broken
- Love wins.
- Closer to Fine
- War On Drugs?
- My Five Precious Teachers
- The Open Heart Curriculum
- The Awkward Rapper
- Cabin Fever and a blog prompt. Unedited.
- My hero, Mom.
- Letter to a Young TSC Mom-unedited version
- Post Season Musings
- TSC Journey
- Poking the Bear.
- Happy Halloween…..
- Mothers without Custody
- The Fifth Child.
- From addiction to grace. A life hack. (rated PG)
- What is it Like Having Tuberous Sclerosis Complex (T.S.C.)
- TSC TALKS Podcast
Category Archives: parenting
The following blog was written in 1993 by my new and good friend, Nina Patry. Nina hails from Rutland Vermont. Her claim to fame is that she is a certified Paradox Process instructor. We met last year while I was … Continue reading
I do not know how to get it out. I do not know how everyone can go along and pretend this is not happening. I feel like my heart is breaking and there is a part of my mind that is shadowed and dark as I try to figure out how to go forward. Does it even matter? Continue reading
There is no excerpt because this is a protected post.
LISTEN TO LATEST How podcasting can build and gather information and motivate change within communities affected by rare medical diseases Creating podcasts within communities affected by a particular disease, and initiating the discussion between parents/caregivers/patients in an interview format, is … Continue reading
The experience of neuropsychiatric issues and TSC , TAND checklist, raising funds Continue reading
My running pitch: I can’t even begin to explain to you how much running has been an elemental coping mechanism in my journey with TSC. For better or for worse, I have come to running as a corridor of freedom … Continue reading
A glimpse into the process of letting go of my 22 year old daughter who has TSC, to a shared living situation Continue reading
So, funny story. Stop me if you’ve heard this one. Some of you have. When my boy was about 8 months old, about that time children start to mimic what you say. You say “Dah Dah” he says in his … Continue reading
When my son Jack was around age 3-4, he was a bolter. I mean a runner. A dasher. As in Dash from The Incredibles, dasher. And fast! The kid would just flat out beat a trail away from me at … Continue reading
“Infantile spasms (IS) is an age-specific seizure type that occurs in 1 out of 2,000 children from many different causes. Tuberous sclerosis complex (also called TSC) is a common cause of infantile spasms, with IS affecting about one third of children with … Continue reading