Category Archives: medical conditions

Lost at the Big Y, STUCK at Walmart. A rather long rant.

When my son Jack was around age 3-4, he was a bolter. I mean a runner.  A dasher.  As in Dash from The Incredibles, dasher.  And fast!  The kid would just flat out beat a trail away from me at … Continue reading

Posted in #IAMTSC, addiction, autism spectrum disorder, Buddhism, epilepsy, medical conditions, parenting, special needs, tuberous sclerosis complex, Uncategorized, Wheaton College | 1 Comment

Infantile Spasm Miracles

“Infantile spasms (IS) is an age-specific seizure type that occurs in 1 out of 2,000 children from many different causes. Tuberous sclerosis complex (also called TSC) is a common cause of infantile spasms, with IS affecting about one third of children with … Continue reading

Posted in #IAMTSC, #ISAW2016, autism spectrum disorder, cannabis, epilepsy, Infantile Spasms, medical conditions, parenting, special needs, tuberous sclerosis complex | 1 Comment

My son Jack was concerned recently that he had acquired Tetanus. Lockjaw.  He locked down on this notion and obsessed about it to the point of not being able to eat or sleep, was having trouble functioning at school and … Continue reading

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Trumped!!

I glimpsed her red trump hat as I turned the corner to go out onto the main road.  She was dressed in shades and patterns of red, swinging her arms and walking in rhythm to her music, a constant companion. … Continue reading

Posted in #IAMTSC, autism spectrum disorder, Buddhism, Eckhart Tolle, medical conditions, parenting, Ram Dass, recovery, tuberous sclerosis complex | Tagged , , , , , , , | 1 Comment

The Power of Ice Cream

We have this little issue with ice cream in our family.  It goes way back.  Way back in my ancestral tribe.  Maybe it’s something that goes way back for a lot of us, those first memories of eating ice cream, … Continue reading

Posted in #IAMTSC, addiction, Buddhism, Eckhart Tolle, medical conditions, parenting, Ram Dass, recovery, Tara Brach, tuberous sclerosis complex | Leave a comment

Discourse on Madness

In my own personal reflections lately, I’ve often pondered just what it is about the label “recovering” alcoholic, that I find frustrating personally, as well as what it is about 12 step support groups, and the overall image of the … Continue reading

Posted in #IAMTSC, addiction, Buddhism, Eckhart Tolle, medical conditions, parenting, Ram Dass, recovery, Tara Brach, tuberous sclerosis complex, Uncategorized, Wheaton College | Leave a comment

The Path…infused with Artisanal by Dad

My father died of fronto-temporal dementia in September of 2004.  He was an exceptional human being in the way we all are exceptional human beings, however, he knew it.  He was a paratrooper in his early twenties and jumped out … Continue reading

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Running Out

And so, I ran my way out of my crisis of faith. Faith looks like running shoes and the great outdoors. I have been a runner for many many years and find running outside such a solace; me, my shoes … Continue reading

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Crisis of Faith

I am having a true crisis of faith lately and I am struggling emotionally to come to terms with the life I have had a good hand in creating for myself.  If I can believe in God and that this … Continue reading

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Everything Is Broken

“Seem like every time you stop and turn around Something else just hit the ground Broken cutters broken saws Broken buckles broken laws Broken bodies broken bones Broken voices on broken phones Take a deep breath feel like you’re chokin’ … Continue reading

Posted in addiction, medical conditions, parenting, tuberous sclerosis complex | 2 Comments