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Blogs
- TSC & Mental Health
- Team TSC & The Marine Corp Marathon
- Dear Wheaton College,
- What Tuberous Sclerosis Complex taught me about love
- Precious Moments~by JD Brigham
- Special Needs Mom.
- Lost at the Big Y, STUCK at Walmart. A rather long rant.
- TETANUS
- Infantile Spasm Miracles
- Trumped!!
- The Power of Ice Cream
- The Path…infused with Artisanal by Dad
- Happy Mother’s Day, a bit early for once.
- Marathon Aftermath
- Homeward Bound via the Boston Marathon
- Booze at the Big Y
- Running Out
- Crisis of Faith
- Scattered Roots and Holiday Musings
- My Friend Paul & Addendum
- Everything Is Broken
- Love wins.
- Closer to Fine
- War On Drugs?
- My Five Precious Teachers
- The Open Heart Curriculum
- The Awkward Rapper
- Cabin Fever and a blog prompt. Unedited.
- My hero, Mom.
- Letter to a Young TSC Mom-unedited version
- Post Season Musings
- TSC Journey
- Poking the Bear.
- Dad.
- Happy Halloween…..
- Mothers without Custody
- The Fifth Child.
- From addiction to grace. A life hack. (rated PG)
- What is it Like Having Tuberous Sclerosis Complex (T.S.C.)
- TSC TALKS Podcast
Tag Archives: parenting
Giving Thanks for My Specials – Thanksgiving Day 1993 Nina Patry~Guest Blogger
The following blog was written in 1993 by my new and good friend, Nina Patry. Nina hails from Rutland Vermont. Her claim to fame is that she is a certified Paradox Process instructor. We met last year while I was … Continue reading
Special Needs, Disabilities and the New World Order
In the brave new world into which it appears that we are headed and the increased attention to rigid controlled and mandated “health” measures, escalating global surveillance, pressure to either join the party or be left behind, we are often … Continue reading
Polypharmacy Rant
So you play along, educate yourself, immerse yourself in reading and learning everything you can get your hands on in order to navigate the medical system and get your kids the best possible care. Continue reading
Posted in #IAMTSC, Cannabinoid medicine, cannabis, epilepsy, special needs, tuberous sclerosis complex
Tagged #podcast #autismawareness #epilepsy #parenting #raredisease #PTSD #chronicdisease, autism, Cannabinoid medicine, cannabis, epilepsy, medical conditions, parenting, polypharmacy, seizures, tuberous sclerosis complex
3 Comments
TSC & Mental Health
The experience of neuropsychiatric issues and TSC , TAND checklist, raising funds Continue reading
Posted in #IAMTSC, addiction, autism spectrum disorder, epilepsy, marathon training, medical conditions, parenting, special needs, tuberous sclerosis complex
Tagged #IAMTSC, #marathonrunner, #mentalhealth #runner #specialneeds #IAMTSC, christian college, medical conditions, parenting, rare diseases, tuberous sclerosis, Wheaton College
1 Comment
Running Out
And so, I ran my way out of my crisis of faith. Faith looks like running shoes and the great outdoors. I have been a runner for many many years and find running outside such a solace; me, my shoes … Continue reading
Crisis of Faith
I am having a true crisis of faith lately and I am struggling emotionally to come to terms with the life I have had a good hand in creating for myself. If I can believe in God and that this … Continue reading
Posted in addiction, medical conditions, parenting, tuberous sclerosis complex
Tagged #IAMTSC, alcoholics anonymous, athiesm, parenting, rare diseases, recovery
6 Comments
From addiction to grace. A life hack. (rated PG)
I experienced a life hack when I was cast into the realm of the spiritual world during a marijuana induced psychosis. I had a true out of body experience that was at once as horrifying as it was incredible. It … Continue reading
True grit motherhood. 