Tag Archives: difficult child

Let’s get together and Podcast!

LISTEN TO LATEST How podcasting can build and gather information and motivate change within communities affected by rare medical diseases Creating podcasts within communities affected by a particular disease, and initiating the discussion between parents/caregivers/patients in an interview format, is … Continue reading

Posted in #IAMTSC, autism spectrum disorder, epilepsy, Infantile Spasms, medical conditions, parenting, special needs, tuberous sclerosis complex | Tagged , , | 1 Comment

Trumped!!

I glimpsed her red trump hat as I turned the corner to go out onto the main road. ¬†She was dressed in shades and patterns of red, swinging her arms and walking in rhythm to her music, a constant companion. … Continue reading

Posted in #IAMTSC, autism spectrum disorder, Buddhism, Eckhart Tolle, medical conditions, parenting, Ram Dass, recovery, tuberous sclerosis complex | Tagged , , , , , , , | 1 Comment

Running Out

And so, I ran my way out of my crisis of faith. Faith looks like running shoes and the great outdoors. I have been a runner for many many years and find running outside such a solace; me, my shoes … Continue reading

Posted in #IAMTSC, addiction, Buddhism, medical conditions, parenting, tuberous sclerosis complex | Tagged , , , , , , , , , , | Leave a comment