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Blogs
- TSC & Mental Health
- Team TSC & The Marine Corp Marathon
- Dear Wheaton College,
- What Tuberous Sclerosis Complex taught me about love
- Precious Moments~by JD Brigham
- Special Needs Mom.
- Lost at the Big Y, STUCK at Walmart. A rather long rant.
- TETANUS
- Infantile Spasm Miracles
- Trumped!!
- The Power of Ice Cream
- The Path…infused with Artisanal by Dad
- Happy Mother’s Day, a bit early for once.
- Marathon Aftermath
- Homeward Bound via the Boston Marathon
- Booze at the Big Y
- Running Out
- Crisis of Faith
- Scattered Roots and Holiday Musings
- My Friend Paul & Addendum
- Everything Is Broken
- Love wins.
- Closer to Fine
- War On Drugs?
- My Five Precious Teachers
- The Open Heart Curriculum
- The Awkward Rapper
- Cabin Fever and a blog prompt. Unedited.
- My hero, Mom.
- Letter to a Young TSC Mom-unedited version
- Post Season Musings
- TSC Journey
- Poking the Bear.
- Dad.
- Happy Halloween…..
- Mothers without Custody
- The Fifth Child.
- From addiction to grace. A life hack. (rated PG)
- What is it Like Having Tuberous Sclerosis Complex (T.S.C.)
- TSC TALKS Podcast
Tag Archives: #podcast #autismawareness #epilepsy #parenting #raredisease #PTSD #chronicdisease
Giving Thanks for My Specials – Thanksgiving Day 1993 Nina Patry~Guest Blogger
The following blog was written in 1993 by my new and good friend, Nina Patry. Nina hails from Rutland Vermont. Her claim to fame is that she is a certified Paradox Process instructor. We met last year while I was … Continue reading
Polypharmacy Rant
So you play along, educate yourself, immerse yourself in reading and learning everything you can get your hands on in order to navigate the medical system and get your kids the best possible care. Continue reading
Posted in #IAMTSC, Cannabinoid medicine, cannabis, epilepsy, special needs, tuberous sclerosis complex
Tagged #podcast #autismawareness #epilepsy #parenting #raredisease #PTSD #chronicdisease, autism, Cannabinoid medicine, cannabis, epilepsy, medical conditions, parenting, polypharmacy, seizures, tuberous sclerosis complex
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Protected: The Personal Pitfalls of Chronic Disease (TSC) meeting PTSD
There is no excerpt because this is a protected post.
Posted in #IAMTSC, addiction, autism spectrum disorder, Buddhism, epilepsy, medical conditions, parenting, Ram Dass, recovery, special needs, tuberous sclerosis complex
Tagged #podcast #autismawareness #epilepsy #parenting #raredisease #PTSD #chronicdisease
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Let’s get together and Podcast!
LISTEN TO LATEST How podcasting can build and gather information and motivate change within communities affected by rare medical diseases Creating podcasts within communities affected by a particular disease, and initiating the discussion between parents/caregivers/patients in an interview format, is … Continue reading