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Blogs
- TSC & Mental Health
- Team TSC & The Marine Corp Marathon
- Dear Wheaton College,
- What Tuberous Sclerosis Complex taught me about love
- Precious Moments~by JD Brigham
- Special Needs Mom.
- Lost at the Big Y, STUCK at Walmart. A rather long rant.
- TETANUS
- Infantile Spasm Miracles
- Trumped!!
- The Power of Ice Cream
- The Path…infused with Artisanal by Dad
- Happy Mother’s Day, a bit early for once.
- Marathon Aftermath
- Homeward Bound via the Boston Marathon
- Booze at the Big Y
- Running Out
- Crisis of Faith
- Scattered Roots and Holiday Musings
- My Friend Paul & Addendum
- Everything Is Broken
- Love wins.
- Closer to Fine
- War On Drugs?
- My Five Precious Teachers
- The Open Heart Curriculum
- The Awkward Rapper
- Cabin Fever and a blog prompt. Unedited.
- My hero, Mom.
- Letter to a Young TSC Mom-unedited version
- Post Season Musings
- TSC Journey
- Poking the Bear.
- Dad.
- Happy Halloween…..
- Mothers without Custody
- The Fifth Child.
- From addiction to grace. A life hack. (rated PG)
- What is it Like Having Tuberous Sclerosis Complex (T.S.C.)
- TSC TALKS Podcast
Category Archives: tuberous sclerosis complex
What Tuberous Sclerosis Complex taught me about love
A glimpse into the process of letting go of my 22 year old daughter who has TSC, to a shared living situation Continue reading
Lost at the Big Y, STUCK at Walmart. A rather long rant.
When my son Jack was around age 3-4, he was a bolter. I mean a runner. A dasher. As in Dash from The Incredibles, dasher. And fast! The kid would just flat out beat a trail away from me at … Continue reading
Infantile Spasm Miracles
“Infantile spasms (IS) is an age-specific seizure type that occurs in 1 out of 2,000 children from many different causes. Tuberous sclerosis complex (also called TSC) is a common cause of infantile spasms, with IS affecting about one third of children with … Continue reading
TETANUS
My son Jack was concerned recently that he had acquired Tetanus. Lockjaw. He locked down on this notion and obsessed about it to the point of not being able to eat or sleep, was having trouble functioning at school and … Continue reading
The Power of Ice Cream
We have this little issue with ice cream in our family. It goes way back. Way back in my ancestral tribe. Maybe it’s something that goes way back for a lot of us, those first memories of eating ice cream, … Continue reading
The Path…infused with Artisanal by Dad
My father died of fronto-temporal dementia in September of 2004. He was an exceptional human being in the way we all are exceptional human beings, however, he knew it. He was a paratrooper in his early twenties and jumped out … Continue reading
Posted in #IAMTSC, addiction, Buddhism, medical conditions, parenting, Ram Dass, Tara Brach, tuberous sclerosis complex, Uncategorized
Tagged addiction, recovery, Wheaton College
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Running Out
And so, I ran my way out of my crisis of faith. Faith looks like running shoes and the great outdoors. I have been a runner for many many years and find running outside such a solace; me, my shoes … Continue reading
Crisis of Faith
I am having a true crisis of faith lately and I am struggling emotionally to come to terms with the life I have had a good hand in creating for myself. If I can believe in God and that this … Continue reading
Posted in addiction, medical conditions, parenting, tuberous sclerosis complex
Tagged #IAMTSC, alcoholics anonymous, athiesm, parenting, rare diseases, recovery
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Everything Is Broken
“Seem like every time you stop and turn around Something else just hit the ground Broken cutters broken saws Broken buckles broken laws Broken bodies broken bones Broken voices on broken phones Take a deep breath feel like you’re chokin’ … Continue reading
From addiction to grace. A life hack. (rated PG)
I experienced a life hack when I was cast into the realm of the spiritual world during a marijuana induced psychosis. I had a true out of body experience that was at once as horrifying as it was incredible. It … Continue reading
True grit motherhood. 