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Blogs
- TSC & Mental Health
- Team TSC & The Marine Corp Marathon
- Dear Wheaton College,
- What Tuberous Sclerosis Complex taught me about love
- Precious Moments~by JD Brigham
- Special Needs Mom.
- Lost at the Big Y, STUCK at Walmart. A rather long rant.
- TETANUS
- Infantile Spasm Miracles
- Trumped!!
- The Power of Ice Cream
- The Path…infused with Artisanal by Dad
- Happy Mother’s Day, a bit early for once.
- Marathon Aftermath
- Homeward Bound via the Boston Marathon
- Booze at the Big Y
- Running Out
- Crisis of Faith
- Scattered Roots and Holiday Musings
- My Friend Paul & Addendum
- Everything Is Broken
- Love wins.
- Closer to Fine
- War On Drugs?
- My Five Precious Teachers
- The Open Heart Curriculum
- The Awkward Rapper
- Cabin Fever and a blog prompt. Unedited.
- My hero, Mom.
- Letter to a Young TSC Mom-unedited version
- Post Season Musings
- TSC Journey
- Poking the Bear.
- Dad.
- Happy Halloween…..
- Mothers without Custody
- The Fifth Child.
- From addiction to grace. A life hack. (rated PG)
- TSC TALKS Podcast
- What is it Like Having Tuberous Sclerosis Complex (T.S.C.)
Category Archives: Uncategorized
Closer to Fine
So here’s the thing, lately, I’ve been thinking a lot of all the different roles I have had over the course of my life, because when you get to be my age, “you’ve seen some shit” (JD). All these roles … Continue reading
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War On Drugs?
I read a fascinating article recently titled, “A War Well Lost Sam Harris and Johann Hari discuss the “war on drugs”.”(samharris.org 4/7/15) It is a riveting, however lengthy article and prompted me to weigh in on this topic in my … Continue reading
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My Five Precious Teachers
While going through photos recently to find some baby photos for end of school yearbooks, (a 5th grade yearbook? I’ll let let you guess my thoughts on this one), I happened upon the picture posted with this blog, of myself … Continue reading
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The Open Heart Curriculum
So on the way to drop of my 5th grader one morning, she said, “OMG, did you hear the Zahn left One Direction?, I guess he wants to go back to being normal….but mom, I don’t think he can ever go … Continue reading
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The Awkward Rapper
My 19 year old daughter is an awkward rapper, on her own terms. Her umbrella diagnosis is tuberous sclerosis complex, but one of the tangential diagnoses she carries is autism spectrum disorder. Without going back through her medical history, Id … Continue reading
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Cabin Fever and a blog prompt. Unedited.
I’m in snow induced lockdown with four kids right now, again and I finally farted around enough to get myself to sit down and write….Ok, I’ll admit, I have been struggling to find the perfect mom-kid-parenting blog topic, when an … Continue reading
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My hero, Mom.
A few days ago, January 23rd, was my mother’s birthday. I cannot tell you how old she is because she would; a. kill me, and b. I’d be dead so moot point. Actually, I kind of forget how old she … Continue reading
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Letter to a Young TSC Mom-unedited version
When asked to write a blog for this newsletter, I was thrilled. The topic, “Letter to a young TSC mom” was also exciting, I was sure it would be a no brainer, a home run, not even sliding into home. … Continue reading
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Post Season Musings
It is often I sit, butt in chair, uninspired and push the word across the page. I cannot wait for inspiration but must dig and tunnel for it from the depths of my person. So…. what happened over Christmas vacation? … Continue reading
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